Krabbe Disease - Leukodystrophy Extensive Resources

Core blood transplant: http://www.huntershope.org/site/DocServer/Cord_Blood_Transplant.pdf?docID=1541 

Hunter's Hope Family Programs (son of NFL QB Jim Kelly whose son Hunter had Krabbe Disease. There is a family and medical conference in July, info on treatment at Duke University, family resources, general information, adaptive loan equipment, and more: 
http://hhf.convio.net/site/PageServer?pagename=familyprograms

Stem cell blood transplant can help infants with Krabbe disease at Duke University: http://www.wral.com/news/local/story/117234/

Extensive Website Directory for Leukodystrophy: http://www.booloon.com/index/Krabbe%20leukodystrophy/Krabbe%20leukodystrophy.htm

Krabbe Disease info from Wkipedia: http://en.wikipedia.org/wiki/Krabbe_disease

NINDS Krabbe Disease Information: http://www.ninds.nih.gov/disorders/krabbe/krabbe.htm

Krabbe Leukodystrophy from National Institute of Health: http://rarediseases.info.nih.gov/GARD/Condition/6844/Krabbe_leukodystrophy.aspx

Krabbe Leukodystrophy: http://leukodystrophy.wordpress.com/#!/page/1

WebMD: http://www.webmd.com/brain/leukodystrophy-krabbes

The Myelin Project: http://en.wikipedia.org/wiki/The_Myelin_Project

Chloe's story: http://en.wikipedia.org/wiki/The_Myelin_Project

United Leukodytrophy Foundation: http://ulf.org/

New York Times Health: http://health.nytimes.com/health/guides/disease/krabbe-disease/overview.html

Stem Cell Transplant story of Jackson White: http://www.jacksonwhite.com/medical.htm

National Bone Marrow and Stem Blood Cell: http://marrow.org/Home.-

The Myelin Project: http://www.myelin.org/

Hematopoietic Stem Cell http://emedicine.medscape.com/article/991032-overview

Researchers report success with stem cell transplant: http://www.newmaterials.com/Customisation/News/Research_&_Development/University/Researchers_report_success_with_Krabbe_disease_patients.asp

Healing Anaya: My Hero Lisa's story: http://healinganaya.blogspot.com/2011/06/pic.html

Krabbe Disease National Bone Marrow page: http://marrow.org/Patient/Disease_and_Treatment/About_Your_Disease/Metabolic_Disorders/Krabbe_Disease.aspx






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